Navigating inclusive practices: Experiences of families with neurodiverse learners in early childhood in the Sarah Baartman District, Rural Humansdorp, South Africa

Authors

DOI:

https://doi.org/10.38140/ijrcs-2024.vol7.1.06

Keywords:

Neurodiverse, early childhood development, activity theory, transformative paradigm

Abstract

Inclusive early childhood education for neurodiverse learners in rural Eastern Cape is under-researched, especially regarding family, educator, and community roles amid resource constraints. This study explores the lived experiences of families with neurodiverse children and examines how inclusive practices can be co-constructed through collective agency within a rural context. Employing Participatory Action Research (PAR) within a transformative paradigm, the study is guided by Cultural-Historical Activity Theory (CHAT) to investigate how social, cultural, and historical factors shape family engagement with early education. Participants were purposefully selected and included all three early childhood educators at a local Early Childhood Development (ECD) centre, the Foundation Phase Head of Department at the nearby full-service school (to which the ECD centre serves as a feeder), three parents of neurodiverse learners (from five identified, with three consenting), and two community volunteers supporting the centre. Story circles provided dialogical spaces for participants to reflect on challenges and collaboratively develop contextually relevant, culturally responsive strategies. Key findings underscore the critical role of community support, the detrimental impact of limited resources on early intervention, and the influence of cultural beliefs on inclusive practices. The study highlights the potential of community-driven approaches that leverage local knowledge and relationships to enhance inclusion. This research contributes to the discourse on inclusive education by centring families and communities as active agents in shaping equitable, locally grounded practices. It advocates for stronger collaboration among stakeholders to promote the educational rights and holistic well-being of neurodiverse learners in rural settings.

References

Abdalla, H., & Moussa, A. (2024). Culturally responsive teaching: Navigating models and implementing effective strategies. Acta Pedagogia Asiana, 3(2), 91–100. https://doi.org/10.53623/apga.v3i2.432

Alcorn, A. M., McGeown, S., Mandy, W., Aitken, D., & Fletcher-Watson, S. (2024). Learning about neurodiversity at school: A feasibility study of a new classroom programme for mainstream primary schools. Neurodiversity, 2, 1–14. https://doi.org/10.1177/27546330241272186

Andrews, J., Baguley, M., & Skinner, J. (2021). Educational leadership and the impact of culture: Creating a professional learning community in an international context. Routledge.

Bednarek, R. (2024). Balancing depth and breadth to understand macro phenomena: Some advice for analysing global qualitative datasets. The Journal of Applied Behavioural Science, 60(3), 553-570. https://doi.org/10.1177/00218863241260435

Conkbayir, M. (2021). Early childhood and neuroscience: Theory, research, and implications for practice. Bloomsbury.

Engeström, Y. (2023). Learning by expanding: An activity-theoretical approach to developmental research (3rd ed.). Cambridge University Press.

Flores, E., Henderson, J., Guzman, R., Jackson, P., & Lapidos, A. (2025). Employing community-engaged approaches to develop and implement e-learning for community health workers and peer specialists. Progress in Community Health Partnerships: Research, Education, and Action, 19(1), 107–116. https://doi.org/10.1353/cpr.2025.a956602

Foot, K. A. (2014). Cultural-historical activity theory: Exploring a theory to inform practice and research. Journal of Human Behaviour in the Social Environment, 24(3), 329–347. https://doi.org/10.1080/10911359.2013.831011

Freire, P. (1970). Pedagogy of the oppressed. Continuum.

Freire, P., & Horton, M. (1990). We make the road by walking: Conversations on education and social change. Temple University Press.

Freire, P., & Shor, I. (1987). A pedagogy for liberation: Dialogues on transforming education. Bergin & Garvey.

Hadar-Frumer, M., Ten Napel, H., Yuste-Sánchez, M. J., & Rodríguez-Costa, I. (2023). The International Classification of Functioning, Disability, and Health: Accuracy in aquatic activities reports among children with developmental delay. Children, 10(5), 208–229. https://doi.org/10.3390/children10050908

Hersh, L., Dwyer, P., Kapp, S. K., Shevchuk-Hill, S., Gurba, A. N., Kilgallon, E., Mair, A. P. A., Chang, D. S., Rivera, S. M., & Gillespie-Lynch, K. (2024). Community member views on autism intervention: Effects of closeness to autistic people with intellectual disabilities and nonspeaking autistic people. Autism in Adulthood: Challenges and Management, 6(3), 253–271. https://doi.org/10.1089/aut.2023.0202

Heung, S., Jiang, L., Azenkot, S., & Vashistha, A. (2024). Vulnerable, victimised, and objectified: Understanding ableist hate and harassment experienced by disabled content creators on social media.

Hite, R., Childers, G., & Hoffman, J. (2025). Cultural–Historical Activity Theory as an integrative model of socioscientific issue-based learning in museums using extended reality technologies. International Journal of Science Education, Part B, 15(1), 79–94. https://doi.org/10.1080/21548455.2024.2324854

Howard, T. (2021). Culturally responsive pedagogy. In J. A. Banks (Ed.), Transforming multicultural education policy and practice: Expanding educational opportunities. Teachers College Press.

Gallagher, K., Balt, C., Cardwell, N., & Valve, L. (2024). Arts-led, youth-driven methodology and social impact: “Making what we need” in times of crisis. International Journal of Qualitative Studies in Education, 37(3), 751–766.

Johnson, P., & Pillay, S. (2023). Transformative practices in inclusive education: A participatory approach. Inclusive Education Press.

Jojo, Z. (2024). Culturally responsive pedagogy for promoting understanding mathematics: The case of rural-situated primary schools in post-apartheid South Africa. Interdisciplinary Journal of Sociality Studies, 4(S1), 1–15. https://doi.org/10.38140/ijss-2024.vol4.s1.06

Judge, S. K. (2024). Exploring manifestations of pluriform love in the leadership of Christian early childhood communities: A phenomenological study 2019–2024 in New Zealand (Doctoral dissertation, Andrews University). http://andrews.edu

Kehinde, O. A., Lindly, O. J., Ntombela, B., & Hermann, C. (2023). Brief report: Gender-based stereotypical roles of parents caring for autistic children in Nigeria and South Africa. Journal of Autism and Developmental Disorders, 53(12), 4917–4928. https://doi.org/10.1007/s10803-022-05582-

LaGasse, B., Yoo, G. E., & Hardy, M. W. (2024). Rhythm and music for promoting sensorimotor organisation in autism: Broader implications for outcomes. Frontiers in Integrative Neuroscience, 18, 1403876. https://doi.org/10.3389/fnint.2024.1403876

Macdonald, R. (2023). Participatory action research in education: Theory and practice. Routledge.

MacDonald, C. (2012). Understanding participatory action research: A qualitative research methodology option. The Canadian Journal of Action Research, 13(2), 34–50. Retrieved from https://www.researchgate.net/publication/274063607_Understanding_participatory_action_research_A_qualitative_research_methodology_option

Madyibi, S., & Bayat, A. (2021). A case study of early childhood development facility infrastructure in Philippi, South Africa. Perspectives in Education, 39(4), 156–171. https://doi.org/10.18820/2519593X/pie.v39.i4.11

Mahadew, A. (2024). Challenges in early childhood care and education in impoverished rural communities in KwaZulu-Natal Province, South Africa. Interdisciplinary Journal of Rural and Community Studies, 6, 1–16. https://doi.org/10.38140/ijrcs-2024.vol6.21

Matjokana, T. (2023). Early childhood care and education policy intentions and the realities in rural areas. Perspectives in Education, 41(2), 258–274. https://doi.org/10.38140/pie.v41i2.6741

Moya-Pérez, M., Hernández-Flórez, N., & Lara-Posada, E. (2024). Neurodiversity and inclusive education: A therapeutic and pedagogical approach from music therapy in early childhood education from a systematic review. Salud, Ciencia y Tecnología, 4, 1371. https://doi.org/10.56294/saludcyt2024.1371

Murphy, K. (2023). A guide to neurodiversity in the early years. Anna Freud Centre.

Ndlovu, S. (2023). Indigenous knowledge systems in Africa: Exclusion of students with disabilities in South African higher education. Curriculum Perspectives, 43(1), 127–140. https://doi.org/10.1007/s41297-023-00202-1

Ngwenya, T., & Dlamini, M. (2024). Culturally responsive pedagogy in rural schools: Voices from the margins. South African Academic Press.

Obiakor, F. E., Aluka, I. J., Obiakor, G. C., & Obi, S. O. (2024). Educating culturally and linguistically diverse students with disabilities in inclusive settings: Beyond debates. Multicultural Learning and Teaching, 19(1), 111–122. https://doi.org/10.1515/mlt-2022-0009

Pedler, M. (Ed.). (2012). Action learning in practice (4th ed.). Routledge.

Sannino, A., & Engeström, Y. (2018). Cultural–historical activity theory: Founding insights and new challenges. Cultural-Historical Psychology, 14(3), 43–56. https://doi.org/10.17759/chp.2018140304

Serrat, O. (2017). Knowledge solutions: Tools, methods, and approaches to drive organizational performance. Springer.

Suhalka, V. (2024). Social work in disability studies: Insights from anthropology. Tata Institute of Social Sciences Journal of Disability Studies and Research, 4(1), 31–50.

Tikhonova, E., & Raitskaya, L. (2024). The culture of research: A systematic scoping review. Journal of Language and Education, 10(1), 5–24. https://doi.org/10.17323/jle.2024.1.37.5

Tomlinson, C. A., & Imbeau, M. B. (2023). Leading and managing a differentiated classroom. ASCD.

Tracy, S. J. (2022). Qualitative research methods: Collecting evidence, crafting analysis, communicating impact. Wiley.

Yaacob, W. N. W., Yaacob, L. H., Muhamad, R., & Zulkifli, M. M. (2021). Behind the scenes of parents nurturing a child with autism: A qualitative study in Malaysia. International Journal of Environmental Research and Public Health, 18(16), 853–860. https://doi.org/10.3390/ijerph18168532

Wood, L. (2020). Participatory action learning and action research: Theory, practice and process. Routledge.

Zahir, R., Alcorn, A. M., McGeown, S., Mandy, W., Aitken, D., Murray, F., & Fletcher-Watson, S. (2024). Short report: Evaluation of wider community support for a neurodiversity teaching programme designed using participatory methods. Autism: The International Journal of Research and Practice, 28(6), 1582–1590.

Zanjani, F., Rhodes, A., O'Donnell, K., Hawks, C., Boling, P., Slattum, P. W., Price, E., Parsons, P., Falls, K., Mansion, N., Diallo, A., Battle, K., Hobgood, S., Waters, L., Gendron, T., Atkinson, E., Jones, M., McDonoug, K., Worthington, G., Boron, J. B., … Sargent, L. (2025). Community input for addressing dementia health disparities: Richmond Brain Health Initiative. Progress in Community Health Partnerships: Research, Education, and Action, 19(1), 71–83. https://doi.org/10.1353/cpr.2025.a956599

Published

2025-07-18

How to Cite

Geduld, D., & Majola, E. (2025). Navigating inclusive practices: Experiences of families with neurodiverse learners in early childhood in the Sarah Baartman District, Rural Humansdorp, South Africa. Interdisciplinary Journal of Rural and Community Studies, 7(1), a06. https://doi.org/10.38140/ijrcs-2024.vol7.1.06